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1

Ethical issues related to clinical research and rare diseases

Coors, Marilyn, Bauer, Larry, Edwards, Kelly, Erickson, Karen, Goldenberg, Aaron, Goodale, John, Goodman, Kenneth, Grady, Christine, Mannino, David, Wanner, Adam, Wilson, Todd, Yarborough, Mark, Zirkl

Journal:

Translational Science of Rare Diseases

Year:

2017

Language:

english

File:

PDF, 352 KB

english, 2017

2

Practical Barriers and Ethical Challenges in Genetic Data Sharing

Simpson, Claire, Goldenberg, Aaron, Culverhouse, Rob, Daley, Denise, Igo, Robert, Jarvik, Gail, Mandal, Diptasri, Mascalzoni, Deborah, Montgomery, Courtney, Pierce, Brandon, Plaetke, Rosemarie, Shete,

Journal:

International Journal of Environmental Research and Public Health

Year:

2014

Language:

english

File:

PDF, 560 KB

english, 2014

3

Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks

Goldenberg, Aaron, Brothers, Kyle

Journal:

American Journal of Bioethics

Year:

2018

Language:

english

File:

PDF, 861 KB

english, 2018

4

Exploring prenatal genetic counselors' perceptions of abortion laws in restrictive states

Koenig, Shelby, Simi, Eve, Goldenberg, Aaron, Magasi, Susan, Wicklund, Catherine

Journal:

Journal of Genetic Counseling

Year:

2019

Language:

english

File:

PDF, 828 KB

english, 2019

5

An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots

Rothwell, Erin, Goldenberg, Aaron, Johnson, Erin, Riches, Naomi, Tarini, Beth, Botkin, Jeffrey R.

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2017

Language:

english

File:

PDF, 1016 KB

english, 2017

6

GALVANIC STIMULATION OF THE VESTIBULAR SYSTEM AND PERCEPTION OF THE VERTICAL

AARONS, LOUIS, GOLDENBERG, LOUIS

Journal:

Perceptual and Motor Skills

Year:

1964

Language:

english

File:

PDF, 324 KB

english, 1964

7

A Comparison of Assay Technics in Experimental Disuse Osteoporosis The Effect of Nandrolone Phenpropionate (Durabolin)

LEVIN, SAUL M., SIMKIN, ARIEL, NAOR, ELLEN, ROUIN, GORDON C., GOLDENBERG, AARON, DORFMAN, HOWARD

Journal:

Clinical Orthopaedics and Related Research®

Year:

1972

File:

PDF, 255 KB

1972

8

Ethical Issues with Newborn Screening in the Genomics Era

Tarini, Beth A., Goldenberg, Aaron J.

Journal:

Annual Review of Genomics and Human Genetics

Year:

2012

Language:

english

File:

PDF, 295 KB

english, 2012

9

Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital

Cooke Bailey, Jessica, Crawford, Dana, Goldenberg, Aaron, Slaven, Anne, Pencak, Julie, Schachere, Marleen, Bush, William, Sedor, John, O’Toole, John

Journal:

Journal of Personalized Medicine

Year:

2018

Language:

english

File:

PDF, 467 KB

english, 2018

10

Parents’ interest in whole-genome sequencing of newborns

Goldenberg, Aaron J., Dodson, Daniel S., Davis, Matthew M., Tarini, Beth A.

Journal:

Genetics in Medicine

Year:

2014

Language:

english

File:

PDF, 439 KB

english, 2014

11

What parents want to know about the storage and use of residual newborn bloodspots

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca A., Goldenberg, Aaron, Kuppermann, Miriam, Dolan, Siobhan M., Rose, Nancy C., Stark, Louisa

Journal:

American Journal of Medical Genetics Part A

Year:

2014

Language:

english

File:

PDF, 105 KB

english, 2014

12

A Newborn Screening Education Best Practices Framework: Development and Adoption

Evans, Adrianna, LeBlanc, Keri, Bonhomme, Natasha, Shone, Scott M., Gaviglio, Amy, Freedenberg, Debra, Penn, Jeremy, Johnson, Carol, Vogel, Beth, Dolan, Siobhan M., Goldenberg, Aaron J.

Journal:

International Journal of Neonatal Screening

Year:

2019

File:

PDF, 1.17 MB

2019

13

IRB practices and policies regarding the secondary research use of biospecimens

Goldenberg, Aaron J, Maschke, Karen J, Joffe, Steven, Botkin, Jeffrey R, Rothwell, Erin, Murray, Thomas H, Anderson, Rebecca, Deming, Nicole, Rosenthal, Beth F, Rivera, Suzanne M

Journal:

BMC Medical Ethics

Year:

2015

Language:

english

File:

PDF, 373 KB

english, 2015

14

A Midline Mediastinal Parathyroid Cyst

Slonimsky, Guy, Baker, Aaron, Crist, Henry, Goldenberg, David

Journal:

Ear, Nose & Throat Journal

Year:

2018

Language:

english

File:

PDF, 3.18 MB

english, 2018

15

US public cord blood banking practices: recruitment, donation, and the timing of consent

Sherri M. Broder, Roselle S. Ponsaran, Aaron J. Goldenberg

Journal:

Transfusion (Wiley)

Year:

2012

Language:

english

File:

PDF, 80 KB

english, 2012

16

Early neurocognitive improvements following parathyroidectomy for primary hyperparathyroidism

Shah-Becker, Shivani, Derr, Jonathan, Oberman, Benjamin S., Baker, Aaron, Saunders, Brian, Carr, Michele M., Goldenberg, David

Journal:

The Laryngoscope

Year:

2017

Language:

english

File:

PDF, 185 KB

english, 2017

17

The Association Between Specialty Match and Third-Year Clerkship Performance

Saguil, Aaron, Balog, Erin K., Goldenberg, Matthew N., Dong, Ting, Artino, Anthony R., Zahn, Christopher M., Servey, Jessica T., Ritter, E. Matthew, Welling, David R., Ramsay, Laura B., Ming, Gerald,

Journal:

Military Medicine

Year:

2012

Language:

english

File:

PDF, 672 KB

english, 2012

18

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

Garrison, Nanibaa' A., Brothers, Kyle B., Goldenberg, Aaron J., Lynch, John A.

Journal:

American Journal of Bioethics

Year:

2019

File:

PDF, 692 KB

2019

19

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century

Brothers, Kyle B., Rivera, Suzanne M., Cadigan, R. Jean, Sharp, Richard R., Goldenberg, Aaron J.

Journal:

The Journal of Law, Medicine & Ethics

Year:

2019

File:

PDF, 174 KB

2019

20

Effects of prolonged selective serotonin reuptake inhibition on the development and expression of l-DOPA-induced dyskinesia in hemi-parkinsonian rats

Conti, Melissa M., Ostock, Corinne Y., Lindenbach, David, Goldenberg, Adam A., Kampton, Elias, Dell'isola, Rich, Katzman, Aaron C., Bishop, Christopher

Journal:

Neuropharmacology

Year:

2014

Language:

english

File:

PDF, 1.02 MB

english, 2014

21

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box

Rivera, Suzanne M., Brothers, Kyle B., Cadigan, R. Jean, Harrell, Heather L., Rothstein, Mark A., Sharp, Richard R., Goldenberg, Aaron J.

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 370 KB

english, 2017

22

Surdité de perception bilatérale : mécanisme immunologique, vasculaire ou génétique ?Étude prospective de 34 cas

O. Lidove, M. Ohresser, P. de Mazancourt, P. Goldenberg, S. Mouly, J.E. Kahn, L. Aaron, N. Bernard, D. François, A. Somogyi, O. Blétry

Journal:

La Revue de Médecine Interne

Year:

2001

File:

PDF, 107 KB

2001

23

Is There a Space for Place in Family History Assessment? Underserved Community Views on the Impact of Neighborhood Factors on Health and Prevention

Hartmann, Christopher D., Marshall, Patricia A., Goldenberg, Aaron J.

Journal:

The Journal of Primary Prevention

Year:

2015

Language:

english

File:

PDF, 239 KB

english, 2015

24

Decision-making process for conditions nominated to the Recommended Uniform Screening Panel: statement of the US Department of Health and Human Services Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Kemper, Alex R., Green, Nancy S., Calonge, Ned, Lam, Wendy K.K., Comeau, Anne M., Goldenberg, Aaron J., Ojodu, Jelili, Prosser, Lisa A., Tanksley, Susan, Bocchini Jr, Joseph A.

Journal:

Genetics in Medicine

Year:

2014

Language:

english

File:

PDF, 422 KB

english, 2014

25

Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies

Johnston, Josephine, Lantos, John D., Goldenberg, Aaron, Chen, Flavia, Parens, Erik, Koenig, Barbara A.

Journal:

Hastings Center Report

Year:

2018

Language:

english

File:

PDF, 505 KB

english, 2018

26

Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results

Goldenberg, Aaron J.

Journal:

Year:

2019

Language:

english

File:

PDF, 611 KB

english, 2019

27

Experiences and perspectives on the return of secondary findings among genetic epidemiologists

Stein, Catherine M., Ponsaran, Roselle, Trapl, Erika S., Goldenberg, Aaron J.

Journal:

Genetics in Medicine

Year:

2018

Language:

english

File:

PDF, 263 KB

english, 2018

28

The limited use of US residual newborn screening dried bloodspots for health disparity research

Riches, Naomi O., Johnson, Erin P., Frost, Caren J., Goldenberg, Aaron J., Rothwell, Erin

Journal:

Genetics in Medicine

Year:

2020

File:

PDF, 295 KB

2020

29

Cost-Effective Use of Nevirapine to Prevent Vertical HIV Transmission in Sub-Saharan Africa

Stringer, Jeffrey S. A., Rouse, Dwight J., Vermund, Sten H., Goldenberg, Robert L., Sinkala, Moses, Stinnett, Aaron A.

Journal:

JAIDS Journal of Acquired Immune Deficiency Syndromes

Year:

2000

File:

PDF, 505 KB

2000

30

Online Pediatric Research: Addressing Consent, Assent, and Parental Permission

Brothers, Kyle B., Clayton, Ellen Wright, Goldenberg, Aaron J.

Journal:

The Journal of Law, Medicine & Ethics

Year:

2020

File:

PDF, 121 KB

2020

31

Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

Rothwell, Erin W., Anderson, Rebecca A., Burbank, Matthew J., Goldenberg, Aaron J., Lewis, Michelle Huckaby, Stark, Louisa A., Wong, Bob, Botkin, Jeffrey R.

Journal:

American Journal of Public Health

Year:

2011

Language:

english

File:

PDF, 493 KB

english, 2011

32

Parent and Public Interest in Whole-Genome Sequencing

Dodson, Daniel S., Goldenberg, Aaron J., Davis, Matthew M., Singer, Dianne C., Tarini, Beth A.

Journal:

Public Health Genomics

Year:

2015

Language:

english

File:

PDF, 427 KB

english, 2015

33

Photo-documentation in the community: reflections on genetics, health and health disparities

Morello, Laura, Marshall, Patricia A, Hartmann, Christopher D, Brooks, Sanjur, Colón-Zimmermann, Kari, Goldenberg, Aaron J

Journal:

International Journal of Epidemiology

Year:

2017

Language:

english

File:

PDF, 856 KB

english, 2017

34

Amine- and Ether-Chelated Aryllithium ReagentsStructure and Dynamics

Reich, Hans J., Goldenberg, Wayne S., Sanders, Aaron W., Jantzi, Kevin L., Tzschucke, C. Christoph

Journal:

Journal of the American Chemical Society

Year:

2003

Language:

english

File:

PDF, 406 KB

english, 2003

35

Genomic Counseling in the Newborn Period: Experiences and Views of Genetic Counselors

Nardini, Monica D., Matthews, Anne L., McCandless, Shawn E., Baumanis, Larisa, Goldenberg, Aaron J.

Journal:

Journal of Genetic Counseling

Year:

2014

Language:

english

File:

PDF, 227 KB

english, 2014

36

Extraskeletal Ewing’s Sarcoma Arising in the Larynx

Lynch, Michael C., Baker, Aaron, Drabick, Joseph J., Williams, Nicole, Goldenberg, David

Journal:

Head and Neck Pathology

Year:

2014

Language:

english

File:

PDF, 926 KB

english, 2014

37

Genomic newborn screening: public health policy considerations and recommendations

Friedman, Jan M., Cornel, Martina C., Goldenberg, Aaron J., Lister, Karla J., Sénécal, Karine, Vears, Danya F.

Journal:

BMC Medical Genomics

Year:

2017

Language:

english

File:

PDF, 502 KB

english, 2017

38

Including ELSI research questions in newborn screening pilot studies

Goldenberg, Aaron J., Lloyd-Puryear, Michele, Brosco, Jeffrey P., Therrell, Bradford, Bush, Lynn, Berry, Susan, Brower, Amy, Bonhomme, Natasha, Bowdish, Bruce, Chrysler, Denise, Clarke, Angus, Crawfor

Journal:

Genetics in Medicine

Year:

2018

Language:

english

File:

PDF, 274 KB

english, 2018

39

Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study

Erin Rothwell, Rebecca Anderson, Aaron Goldenberg, Michelle H. Lewis, Louisa Stark, Matthew Burbank, Bob Wong, Jeffrey R. Botkin

Journal:

Social Science & Medicine

Year:

2012

Language:

english

File:

PDF, 133 KB

english, 2012

40

Correlation of National Board of Medical Examiners Scores with United States Medical Licensing Examination Step 1 and Step 2 Scores

Zahn, Christopher M., Saguil, Aaron, Artino, Anthony R., Dong, Ting, Ming, Gerald, Servey, Jessica T., Balog, Erin, Goldenberg, Matthew, Durning, Steven J.

Journal:

Academic Medicine

Year:

2012

Language:

english

File:

PDF, 495 KB

english, 2012

41

Next-generation disadvantages: identifying potential barriers to integrating genomics into underserved medical settings

Goldenberg, Aaron J, Marshall, Patricia A, Sharp, Richard R

Journal:

Personalized Medicine

Year:

2013

Language:

english

File:

PDF, 750 KB

english, 2013

42

Biobank participant support of newborn screening for disorders with variable treatment and intervention options

Bunnell, Megan E., Tarini, Beth A., Petros, Michael, Goldenberg, Aaron J., Arjunan, Aishwarya, Wicklund, Catherine

Journal:

Journal of Community Genetics

Year:

2016

Language:

english

File:

PDF, 1.06 MB

english, 2016

43

Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial

Rothwell, Erin, Johnson, Erin, Wong, Bob, Goldenberg, Aaron, Tarini, Beth A., Riches, Naomi, Stark, Louisa A., Pries, Christina, Langbo, Carrie, Langen, Elizabeth, Botkin, Jeffrey

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2020

File:

PDF, 267 KB

2020

44

Chelated Aryllithium Reagents: Ring Size and Chelating Group Effects

Reich, Hans J., Goldenberg, Wayne S., Sanders, Aaron W., Tzschucke, C. Christoph

Journal:

Organic Letters

Year:

2001

Language:

english

File:

PDF, 70 KB

english, 2001

45

Intrathyroidal carotid artery and nonrecurring right recurrent laryngeal nerve: A case report

Baker, Aaron, Cottrill, Elizabeth E., Munizza, Olivia, McGillen, Kathryn, McKinnon, Tyler, Goldenberg, David

Journal:

Year:

2017

Language:

english

File:

PDF, 429 KB

english, 2017

46

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

Aaron J. Goldenberg, Sara Chandros Hull, Jeffrey R. Botkin, Benjamin S. Wilfond

Journal:

The Journal of Pediatrics

Year:

2009

Language:

english

File:

PDF, 249 KB

english, 2009

47

Exploring prenatal genetic counselors' perceptions of abortion laws in restrictive states

Koenig, Shelby, Simi, Eve, Goldenberg, Aaron, Magasi, Susan, Wicklund, Catherine

Journal:

Journal of Genetic Counseling

Year:

2019

File:

PDF, 828 KB

2019

48

Amine-Chelated Aryllithium ReagentsStructure and Dynamics

Reich, Hans J., Goldenberg, Wayne S., Gudmundsson, Birgir Ö., Sanders, Aaron W., Kulicke, Klaus J., Simon, Katya, Guzei, Ilia A.

Journal:

Journal of the American Chemical Society

Year:

2001

Language:

english

File:

PDF, 221 KB

english, 2001

49

Genomic Sequencing in Newborn Screening Programs—Reply

Goldenberg, Aaron J., Sharp, Richard R.

Journal:

JAMA The Journal of the American Medical Association

Year:

2012

Language:

english

File:

PDF, 55 KB

english, 2012

50

Ethical and legal considerations for pediatric biobank consent: current and future perspectives

Brothers, Kyle B, Goldenberg, Aaron J

Journal:

Personalized Medicine

Year:

2016

Language:

english

File:

PDF, 894 KB

english, 2016

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